Resources

I need to express my gratitude to the faculty and staff of The University of Vermont’s End of Life Doula Professional Certification program for providing most of the resources listed below. I hope you find these links useful. If you have further questions or are in need of more resources, feel free to contact me.


Patients

Hospice Patient’s Rights
What are your rights as a hospice patient.

Advance Directives
Download this form by state. This document is your living will and designates your health care proxy.

The Letter Project
Stanford’s letter templates to get you contemplating and preparing for difficult life situations.

Do I Need to Die Well?
A piece written by Dr. Ira Byock about how dying well is a very personalized experience.

Prepare for a Good End of Life
Judy MacDonald Johnston shares 5 practices for planning for a good end of life.

Start the Conversation
This site shares personal stories and also includes a helpful conversation starter kit.

Common Terms
Here is your page if you want to understand the commonly used terms in advanced care planning.

FAQs About Hospice and Palliative Care
Everything you need to know about both hospice and palliative care.

Exploring End of Life Care Options
This video looks at options for care at the end of life, including hospice and palliative care and ways to pay for care.

Managing Your Pain
A helpful resource to track and speak with your doctor about pain and its management.

This is Me
A form to assist with communication and memory problems when you are in an unfamiliar location.


Caregivers

Concurrent Care for Children
Under the ACA, children with life-threatening health
problems who are enrolled in Medicaid can get both
curative treatment and hospice care. This is called
concurrent care.

Anticipatory Mourning
Dr. Kenneth J. Doka, Professor of Gerontology at the College of New Rochelle, NJ, discusses grief as a constant companion through illness.

Preparatory Grief
Tips for dealing with preparatory grief and differentiating between is and depression.

FAQs on Death and Dying
How to act around and speak to someone who is dying.

Best and Worst Things to Say to Someone in Grief
If you have a hard time knowing what to say when a person has lost someone, you will find this helpful.

How to Recognize and Assess Pain
How to keep a pain log and assess the level of pain that someone is in.

Aromatherapy
A brief review of the use of aromatherapy in palliative and supportive care, including essential oil suggestions.

Sit, Be Quiet
The importance of just being quiet.

Late-Stage Alzheimer’s Caregiving
A brief overview of what to expect while taking care of someone with Alzheimer’s or dementia.

Understanding Dementia Behaviors
A guide for caregivers that reviews common dementia behaviors.

Virtual Dementia Tour
A video showing caregivers what it is like to have dementia from a sensory standpoint.

Caregiving Demonstrations
A valuable set of videos that demonstrate how to physically care for a sick loved one.

Fidget Apron
Sew your own apron to help those with Alzheimer’s or dementia keep their hands busy.

The Conversation Starter Kit
Specifically designed to help families and loved ones of people with Alzheimer’s disease or another form of dementia who want guidance about “having the conversation.”


Medical Staff

Listening at the End of Life
Dr. Bob Gramling discusses the role palliative care plays and the importance of providers making sure the patient’s concerns and wishes are heard.

Atul Gawande on death
Surgeon and New Yorker contributor speaks on death and outlines the four questions that every clinician needs to ask their patients.

First Breath, Final Breath
A TED Talk given by Kim Vesey, a hospice nurse who speaks about the importance of communication and the commonalities between birth and death.

The Best Possible Day
A New York Times piece written by surgeon, Atul Gawande. This contains the four questions that every clinician needs to ask their patients.

I See Dead People: Dreams and Visions of the Dying
Dr. Christopher W. Kerr speaks about patients’ dreams and visions at the end of life. These near experiences often provide comfort and meaning as well as insight into the life led and the death anticipated.

Dreams of Dying Can Play a Therapeutic Role
An article about Dr. Christopher W. Kerr’s work with dreams and what they can teach us about the dying.

The Serious Illness Conversation Guide
How to speak with a patient about their illness and how to develop the best possible treatment plan for them.

Music and Dementia
A short film demonstrating the power of music for those with dementia.

Find a Harp Therapy Practitioner
Find a harpist in your area who is trained to work with patients.

Music and Memory
Current research on music and the brain, playlists and free guides for medical professionals and caregivers.

Clinical Challenges to the Delivery of End of Life Care
Reviews common challenges and offers recommendations for clinicians.

The Management of Common Symptoms in Terminally Ill Patients. Covers the management of fatigue, anorexia, cachexia, nausea and vomiting.

The Management of Common Symptoms in Terminally Ill Patients. Covers the management of constipation, delirium and dyspnea.


Death is not the opposite of life, but a part of it.

Haruki Murakami